The title says it all. “Surgery ain’t for sissies.” Whether going in for a small procedure or a mid-level procedure or one that requires an extended stay in the hospital, surgery knocks the wind out of the sails. Period.
I have waited to post this update, mostly due to feeling as if someone had taken a four-wheel mud ride inside my throat and airway and wondering if typing any words at all while on Oxycodone was a wise decision. (Surely, it might have been funny to see what I would have written.) Tack on a little respiratory infection coming for a visit, and today, well, today is the first day I think I should type any words to be saved for prosperity. .
Mayo had me come in a day early for some pre-op testing and consultations. One of those consultations was with the anesthesia team. Normally, anesthesia is that person you see the morning of your procedure and briefly as they tell you “night-night” while injecting the “good drugs” into the IV line. For this anxious girl, this meeting was the one that I was able to ask questions and they were able to make the notes necessary to make everything the day of surgery proceed seemlessly. To know they were just as concerned about my anesthesia side-effects as I was….well, that’s huge. Permission to drink clear liquids up to two hours before the procedure, even better. It’s the little things that make the biggest difference for any patient. They were very attentive to those details and it has been my experience at Mayo for the most part. The patient comes first. A script for Ativan to take the night before to calm any nerves and it was time to have that “last meal” and prepare mentally for the next morning. (Chester’s is still my favorite place to eat in Rochester…yummy!)
5:30 AM check-in. The process is seamless at Mayo and it was literally minutes until I was back into the room that I would be taken back to after surgery. Various things going on around me to prepare the nurses, the room and myself for the day. Getting shorts to wear to surgery-awesomesauce. Being told that I could go back to the OR with my glasses on and with my earbuds/iPhone for music-can we get an Amen! Then when it was time to go back to the surgery department-being able to walk like a normal, healthy person. I can do this! Pre-op was even more efficient. I was sitting up in the holding bed-another little touch that can make a huge difference, while nurses went over the various questions and anesthesia started the IV. During IV prep, another nurse was making impressions of my teeth for a custom guard-yep, I needed that about thirty years ago-teeth and a lifetime of surgery do not go together. Then the Head/Neck doctor made a stop by and I was quickly taken to the OR suite. Less than ten minutes later, my awareness of anything going on was gone. I awoke in recovery and was quickly released back to the floor where I would spend the rest of the day. Due to how well I had done, I was being released to the hotel the same day!
I do not say this lightly, this was the best surgery experience that I can remember. From Thursday-release, I cannot think of one thing I would want done differently. The biggest praise for me is that I did not get sick…not one single time. I can’t even think of a time I felt queasy. This is not my normal pattern, so I am so grateful to the team for each process they put in place to limit this side-effect.
Friday evening-Sunday evening was tough. I slept most of the time and dealt with some details from surgery that I will just leave off the blog. Monday came and it was time for the post-op visit and hopefully that phrase, “You are free to go.” The pain was still fairly even from the prior two days and eating was still a challenge as well as drinking, but it was getting a little better each day. The doctor went over everything that took place in the OR, along with awesome pictures. Biopsy results from the larynx and tracheal area would be ready by Tuesday at the latest. Having a PET scan with a SUV value of 14 in the trachea, I knew it could go either way. The doctor knew it could go either way as well. He noted that he did not get everything in the trachea due to the large volume and would have me return in January to complete that area as well as see what my body was doing with the scar tissue. The lung biopsy did not take place due to the bronchial scope being unable to reach any of the sites. That will be a procedure on its own in January as well. Just like that, we were on our way back to Wheaton.
I guess we were about two hours into our drive back when the doctor called. With excitement in his voice, I got the all benign, squamous cell papilloma! It would be several days later, that I could let that soak in and realize I had a positive PET scan, changes in the area and my biopsies came back benign. God took care of this for me. I know that He did. I’m not in the clear 100% yet, but that phone call was a huge step forward. There are still some questions about possibly missing the carcinoma at the base in the trachea, but we will cross that bridge in January.
Once home, I was given the gift of blessings by women I have met in our short time at WBC and in small group. These women have shown me such love and compassion. A little back track here. The Bible study date before surgery, these women covered me in prayer like I had never experienced before. I will never forget their hands, their prayers, their tears as we prayed for peace, healing, protection. I know with every fiber in me that those prayers were answered. I am here today looking at systemic therapies that are far less toxic than those I would be facing if these samples had come back carcinoma. More than that, I walked down that surgery hall with confidence and peace. My family covered me in prayer, friends from East to West, everyone that had any knowledge took the time to call out to God on my behalf. For that alone, I am the richest person in the world.
Recovery took a solid three weeks. I am amazed that I actually used to have surgery as a kid and would eat a hamburger that same day and be back at school usually within 36-48 hours. Surgery ain’t for sissies, and it’s certainly not for us “At Your Age” gals!
And now, for the Christmas Miracle.
Surgery was performed to create access for instruments for biopsies and debulking. I was never, not even once, given any hope or indication that I would gain anything back more than possibly a stronger whisper for my voice. The goal was to simply determine if I had converted to cancer and create access for the instruments that would be used for that purpose. The only hope was that in this, I would possibly gain some relief from oxygen-deprivation headaches. Now, imagine my surprise when about four days ago, something louder than a whisper started to come out. It’s not easy to do, as I have truly forgotten how to speak, but when I concentrate, there’s a voice. Those who have known me for the majority of my life, well, they are saying it’s the voice I had in high school. I don’t remember. My son has no memory of me with any type of voice, and my daughter only has a scant memory of one. I don’t know how long it will last, or if it will even come back after the next procedure…but for now, when I really try, there’s a voice. I have woken up each of the past few mornings and the first thing I do, well, is I try to speak. This, based upon all that I have been told by more than one Head/Neck doc, really is my Christmas Miracle. My vocal cords are so damaged, so stenosed, that a voice shouldn’t be possible. I am trying so hard not to think about what happens when it leaves….because I cannot explain the elation I have felt being able to order my own meal in a restaurant. Not having to depend on someone else to speak for me in that setting. Simply being able to talk on the phone for brief periods of time without getting a headache or the person on the other side hoping they heard me correctly.
I can only give the credit to God today for everything. He lead me to Mayo. He carried me into that surgery suite. He heard the prayers of dozens on my behalf. So, for my Christmas miracle, I am grateful. I think if I can have it long enough for the babies to hear their Mimi, for my Josh to be able to remember his Mom with a voice, and for me to remember not to take something so normal for granted…..then I have had the voice long enough. I am going to work so incredibly hard to not beg God for more days with a voice, but ask Him to keep me focused and while I do have a voice that I use it to honor what He has done….not anything else.
Many of those who know this story have asked to hear my voice. I still don’t know if I am going to make a public post with it. The last thing I want to do is draw attention to me, when folks, anything greater than a whisper is God. Period. It’s that simple.
So, this is my Christmas Miracle. Recovery still has a couple areas to work on, but I am well on my way.
“He performs wonders that cannot be fathomed, miracles that cannot be counted” (Job 5:9)